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Abstract Details
Adaptive Challenges and Family Support: Patient Self-Management during Treatment for Chronic Hepatitis C
Donald E Bailey Jr1, Andrew J Muir2, Michael P Cary Jr1, Natalie Ammarell3, Sarah Seaver4, Emily Scirica1, Mitch Mah'moud5, Ruth A Anderson6
Author information
1School of Nursing, Duke University, Durham, NC, USA.
2Division of Gastroenterology, Duke University School of Medicine, Durham, NC, USA.
3Human Service Systems, Chapel Hill, NC, USA.
4Baker Center for Primary Care, Linville, NC, USA.
5RMG Gastroenterology, Raleigh, NC, USA.
6University of North Carolina-Chapel Hill, School of Nursing, Chapel Hill, NC, USA.
Abstract
The authors describe a family's adaptive challenges and adaptive work during a family member's treatment for Chronic Hepatitis C. We audiorecorded index and final clinical visits and interviewed participants (patients and providers) following the visits. We interviewed by telephone and reviewed medical records over the course of treatment. Transcripts were analyzed using directed content analysis. Three themes were identified: family adaptive challenges, patient-described aspects of family members' adaptive challenges, and family adaptive work. There were four subthemes related to family adaptive work. The adaptive leadership framework for chronic illness provided direction for future family intervention.